3 Months and Seizure Update

Today our little bug is 3 months old! We love her so much and are so blessed to have her in our lives. At 3 months old these are the things she loves:

* eating!!!! eats 4 oz every 3 hours sometimes 2 hours

* playing with Ava (they talk like crazy)

* being outside

* weighs 11 pounds 4 ounces 

* loves being naked 

* sleeps about 5 hours at night 

* wears 3-6 months clothes 

* size 2 diapers 

* loves to splash in the bathtub

* loves snuggles and we love to snuggle her too 💜

Update: her meds were increased from 7.5 mg to 15 mg due to her weight and that has seemed to work at this point. She is adjusting well to the new dose, she was pretty sleepy the first few days but doing pretty good now with awake time. We haven't had any seizures since we started the new dose (knocking on wood). Fingers crossed and please keep her in your prayers. Thanks for the love and support emotionally and financially (youcaring account) we appreciate you all so very much! 

3 Months old - 6-20-15

Happy Girl - 3 Months old - 6-20-15

Loves holding onto sisters fingers - BFF

I Hate Seizures!

So this morning at 2:00 AM the thing I have been dreading most happened, seizures started again. We woke up to a blood curdling scream which took me right back to the first night home on March 23-24, 2015. My heart knew that she had just had a seizure, the first one since April 3, 2015. We calmed her down and she started smiling and cooing just like her normal self which made our hearts smile. Then again at 10:00 AM we witnessed another seizure which only lasted about 5-8 seconds but trust me those are the longest seconds of your life, time stands still. As I was typing this I stopped to eat lunch with Ava and Brandon,  while we were eating she had another one. This one lasted longer it was about 20 seconds and Ava was so amazing talking to her telling her she was there for here and rubbing her belly with me. Her eyes looking at me like help (not sure if she even is aware but it feels like it) are the hardest thing to see while she is seizing nothing breaks your heart more then to watch someone you love so much, let alone your child, go through something that you can't stop. We have been in contact with her neurologist and we are increasing her dose of phenobarbital because we are thinking it is because she is out growing her current dose. Our fingers are crossed that this will do the trick. Super happy when not having seizures tho :) Love this girl to pieces!

June 12, 2015 

June 12, 2015

June 12, 2015