Before I start in on the results of her IFSP goals, I just want to say we LOVE our therapists and over the last year they have become family, Cari, Katie and Darcy have done amazing things with our little princess, the princess Drs said wouldn't do anything. The faith and determination they have focused on Emma and her goals is indescribable. They are incredible! Thank you guys for all that you do for Emma and the love and support you also show to Ava (they watch her dance routines and ask about her week every time). I tear up just thinking about how lucky we are to have them in our lives.
ANNUAL IFSP REVIEW
Health: Great *249 days seizure free (knock on wood)
Vision: Pass
Hearing: Pass
This next part does her age equivalent to what she is preforming at. I will post where she was a year ago 2015 and where she is now 2016.
Gross Motor: 2015: 2 months - 2016: 4 months (so just to be clear she started at 2 months age equivalent and now she is at 4 months age equivalent)
Fine Motor: 2015: 2 months - 2016: 6 months
Cognitive: 2015: 3 months - 2016: 6 months
Receptive Communication: 2015: 3 months - 2016: 8 months
Expressive Communication: 2015: 2 months - 2016: 10 months
Social or Emotional: 2015: 3 months - 2016: 9 months
Adaptive: 2015: 4 months - 2016: 7 months
Based off of research Emma is typically not going to develop pass 3-5 months of age in all the above areas. So saying we are thrilled with her results is an understatement. In one year she has almost surpassed that 3-5 month of age in all areas. We know that we have to work extra hard in the Gross motor and Fine motor skills but overall she is making improvements and that is our goal..improving is all that matters! One other thing we have taken into consideration is over the last year Emma struggled with seizures from Aug-October. That 3 months of seizures caused a huge delay in her development, during her infantile spasms she lost a lot of progress that she gained because of those stupid seizures. So once we were able to get her on CBD (cannabis) Oil our world brightened. Her seizures were controlled, she started lasting the full hour of therapy and progressing so much more than ever before. So for us we like to say she's only been working towards her 2015 IFSP goals since Nov. 2015 instead of Aug, once seizure control started. So instead of saying she's progressed this much in a year we look at it more like 9 months instead of a year.
"Inchstones get us to milestones"
Soap Box WARNING: let me start with this...hearing that your child is delayed is no fun especially when they use the word severe :(. But once the shock and sadness wears off get moving!!!! What I mean by this is, if someone in a professional position tells you that your child is delayed or seems to be a little behind in any area please don't wait to get them assessed. Sometimes they get assessed and it's nothing and sometimes there is. Speaking as a mom who has gone through it I know it's hard to admit that something is wrong with your child, but standing back and not helping your child in every way possible is not the answer. Now speaking as a teacher I promise it benefits your child to get them assessed before they are so far behind it is hard for them to catch up. So I am begging you do what's best for your little kiddo even if it hurts you at first because it will benefit them FOREVER! ok stepping down......
Here are some fun pictures with lots of INCHSTONES
and even some we would call MILESTONES!
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| Best Big |
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| playing with a toy on my tummy during therapy |
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| Best Friends from the moment they met |
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| This little lady moved her way off the blanket nice job! |
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| Hanging out at a concert gotta have our awesome earmuffs and wubbanub |
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| hanging with her BFF Abby (Abby also has Lissencepahly) |
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| Thank you PJ's For Fighters Emma loves her jammies and her cuddle puppy |
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| Emma was also given a handmade blanket from Hope Blankets we love it! |
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| Hanging out with this beautiful Princess, Belle |
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| Someone just noticed herself on snapchat LOL |
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| We are doing shirts again if you are interested here is the link: https://www.bonfirefunds.com/embrace-life |
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| Bear Lake Raspberry Days |
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| Practicing holding a baby so she can hold her new baby cousin coming in Jan. 2017 yay for girls! |
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| "Love the Little Things" |
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| Tummy time is always better with big sis and Mickey Mouse |
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| Someone loves her chair |
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| Such a great boater |
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| what big sister is starting kindergarten ahhhh |
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| summer schedule is over back to reality....these two aren't adjusting the best |
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| exhausted after therapy |
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| loves eating new snacks |
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| excited to try new earmuffs |
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| cutie |
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| snuggles all the time - these two are our world |
HERE ARE SOME FUN VIDEOS HOPE YOU ENJOY!
Playtime
head control practice
First outing in her wheelchair stroller! Thanks to the Nelson Family, We love you Charlee!
Big sis had a milestone too she learned how to ride without training wheels!
Great Job Ava we are all so proud of you!
Emma loves playing with the slinky
Emma held her bottle....HUGE milestone
Emma telling me NO....LOL I loved it!
Belly Laughs with big sis
funtimes
What did she just say?!?!?! Listen carefully at 42-45 seconds
Someone loves Cake...well frosting as least haha
Happy 17 Months Emma Lyn Tapia
I WILL LEAVE WITH YOU A BRAND NEW VIDEO THAT NO ONE HAS SEEN YET! EMMA WAS WORKING ON HER HEAD CONTROL IN HER FUN BOUNCER AND LOOK AT HER LEGS BOUNCING HER LIKE CRAZY!
so proud of all your hard work Emma
Until next time I hope you all are Embracing Life and all that it has to offer. Slow down and enjoy every second that you have, it goes by too fast don't miss out! Emma has taught us this and we love to pass along that message. Never take one moment for granted. Thanks for all the love, prayers and support we can't thank you enough. We would love for you to help share Emma's story (on all social media sites) to create awareness for Lissencephaly and the benefits that CBD oil can give to so many other people (kids and adults) I pray that one day everyone has access!
Emma's Facebook Page: Http://facebook.com/embracelifeemma
Instagram: embrace_life_emma
