Please Don't Feel Sorry For Us.......

I have decided to write this blog post for many reasons, but the main reason is because now that Emma is getting older her disabilities are becoming more visual. We get lots of stares and pity eyes as we are out and about in the community. But to be honest we aren't sorry or sad we are happy, yes we hate what Emma has to go through, it's heartbreaking but that is not what makes Emma who she is. Emma isn't just a diagnosis she is much much more. However, reading online about Emma's diagnosis or getting information from medical professionals it all says Emma wont be much or do much.....she will just be a vegetable. She will not breathe on her own, she wont eat on her own, she will never smile, laugh, or show any emotion, she will never really recognize or know who people are and she might not even make it to her first birthday..... Well, if you have been following Emma on Facebook, Instagram or through this blog you have seen that none of that is true for Emma. No, I don't blame Drs for giving us that information because sadly that is all the information that they have to give us, since Lissencephaly is so rare (1 in 100,000), they don't have much information to go off of. I can tell you Emma has surprised a lot of her Drs. and they are super happy about it, she teaches us all something new everyday! 

So I guess what I am trying to say is please don't ever feel sorry for us, we love our life. Emma has brought more into our lives than she could ever take away. She has taught us that no moment should pass without living it to the fullest, creating memories everyday, even if it's something simple like paint-time in her stander with big sister, bike rides, or the opportunity to take a dance class. We want to help Emma live the life that she would want and what little sister wouldn't want to be a dancer like her big sister.

Dance Class with her new Dance outfit. Too cute!

Yes, our life is hard, but honestly who's life isn't???? We all have our battles and they just look different but we all struggle. At some point or another I am sure we all feel as if it's never going to get easier, but we have to get up every morning wipe our tears and push forward, not dreading the end but cherishing every moment and memory that we make up until the end.  We adjust and find our new normals often but it works out and we push through. If Emma can do then so can we and so can you!

These are some songs and quotes that we listen to often.

This first one bring tears to my eyes every time but I love it.....Brandon asked my mom to make him  a shirt that says.....
SHE'S WITH ME.....and he wears it proudly....

If you've followed for awhile you know we love this song. Emma's life is full of battles and uphill climbs. There will always be some sort of mountain and she is always ready to climb it. She is a true fighter and never gives up!

This is HAPPINESS! 

We did not think that this is what our life would be like as parents,
we could pity ourselves, but we choose to be happy 
and cherish every moment we are given as parents to our precious girls
We love you Ava and Emma!

Having a special needs child has changed us, made us better people, opened our eyes to what life is really all about.....loving each other for exactly who we are!

Tell me she's not a happy girl....and adorable too

The connection is more powerful than I could have ever imagined..
Sisters and Best Friends.

This is Us....BLESSED!