The Holidays were a wonderful time for our family for the most part. Thanksgiving was amazing and so fun to share with our wonderful families. Christmas was full of parties, family and so much fun! Here was the sad part Brandon got strep, Ava got pink eye, then croup, and then pink eye returned! Emma got croup too and that was very scary, causing her to have 2 seizures after 51 days being seizure free. Thankfully we were able to monitor her Oxygen level and heartrate with our Owlet (if you don't know what this is and are having a baby it's a must click here!) and with some steroids she was much better but it still lasted from the 20th -27th. We finally got a smile again on the 27th, 7 days without a smile from Emma was rough. So glad to have her happy self back. Yes, I was in a war zone but thanks to OnGuard (essential oil) I survived, LOL. Like I stated above Emma is back on track doing well and seizures are still under control, we have found that fevers are what really spikes her seizure activity. So our goal is no fevers aka keep this little girl as healthy as possible. on a side note if you know you are going to be around us and you are sick or have been sick please, please, please think of Emma and if you think you still are not 100% then stear clear....please her life depends on it.
9 MoNtHs
Emma turned 9 months old on December 20, 2015...wow how time flies. Here are some stats on Emma.
*Height: 27 in
*Weight: 16 pounds 8 ounces
*Loves sweet potatoes
*Started to laugh - a real laugh not just giggles (see video below)
*Says Mama when hungry - not sure she relates it to me as her mom but none the less she is saying it
*Still trying to gain hand awareness -
*Working hard at head control and sitting up
*Can roll from side to back
*Grabbing toys when put in her hand - not on her own but still big
*Smiles bigger everyday
*Loves listening to her toy violet sing and light up
*Loves her new play yard mat from her new friend Abby - see story below called Chirstmas Eve
*Stills everyone's heart when they look into those big brown sparkling eyes
ChRiStMaS EvE
Christmas Eve started off as magical as always with having kids especially a 4 year old. We visited with family exchanged gifts and then headed home to decorate cookies and watch the Christmas Story. As we were decorating cookies Brandon started to tell me how earlier he recieved a voicemail from someone who said we didn't know him and he didn't know us but they had a gift to us from his family to ours. My heart dropped people are so nice...don't get me wrong we were skeptical at first kinda weird right. But he said he would be over soon. When they got to our house they explained how they heard about Emma from the Festival of Trees (previous post) and it stuck out to them because they too had a daughter with Lissencephaly and her name is Abby! We were so happy to finally meet another Liss family. We loved meeting Abby and her family she was amazing she gave us so much hope for Emma. They delivered some gifts for the girls and us we were overwhelmed and can't thank them enough. I also have to thank Abby's sister for writing Ava a letter explaining how important and special her job is being Emma's big sister, I still cry just thinking about it. It is the best letter and Ava wanted to hang it in her room, and that's exactly where it is at this exact moment. We would like to thank Abby and her family for reaching out to us it made our Christmas extra special.
Here are some pics from the last few months to get everyone caught up on this cuteness I live with everyday.
Angel Hands Foundation Christmas Party was a blast!
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| working hard |
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| Merry Christmas from The Tapia Family |
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| Emma's First Movie on New Years Eve |
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| Emma loving her sweet potatoes |
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| The best helper and best big sister hands down! |
Emma Laughed!!! Hearing your children laugh together is the best sound in the world.
It is a sound that I wondered if I would ever hear and in these moments I know that we are so blessed to have eachother.
Hope you all had a Merry Christmas and a Happy New Year!
EMBRACE LIFE
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